I don’t know about the rest of you, but begin with the lack of knowledge about lyme, add in its complexities and vocabulary to my brain fog and I live in confusion. In Charlie Brown, when the teacher would talk, there were never actual words, just the weird sound of “Wa Wa Wa, Wah Wah Wah Wah”. Sometimes I felt like that’s all I could hear coming out of the mouth of my LLMD. This chronic illness and its co-infections inhabit a vocabulary list a mile long with words I wouldn’t have been able to pronounce or spell prior to receiving a Lyme diagnosis.
Even for nurses or seemingly intelligent people, understanding these coinfections and their ailments is a steep mountain of information to climb. My sister is fluent in spanish and has lived out of the country the bulk of her career working for the the State Department. After becoming a mother and living abroad, she said there is a whole other section of spanish vocabulary that I don’t know at all. All the vocabulary for “kid and baby stuff” was unknown to her and she felt raw and vunerable at times where she used to feel so confident.
That’s what knowing and learning through this Lyme disease does. I have been “in” chronic Lyme and healing for over 2 years, but just recently actually understand what biofilm is. Because LLMDs are discovering new things every year, its hard for us to keep up.
Get plugged in to a Facebook group or chat room to help spur your understanding along. Also, give yourself the rest from having to understand and focus on healing. Healing is far more important than understanding.
A fellow Lyme patient asked me once about my research that I did before going into the CCSVI surgery. I could only testify to its benefit. I was nearly dead before the procedure and trusted God for giving me a doctor who discovered it and led me to treatment. I was too far gone at the time to research and check it out and understand what I was getting myself into. Sometimes trust and hope are all you’ve got.
Hold on to the hope anchor and take a step in trust. Don’t get frustrated with your lack of knowledge or the confusion of the illness and its many faces. And I leave you with my best advice spoken from Linus in The Great Pumpkin – Never jump into a pile of leaves with a wet sucker.
Happy Friday!
But God will never forget the needy; the hope of the afflicted will never perish. (Psalm 9:18)
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