I had tremendous chest pain, arrhythmias, tachycardia, head temple pressure, scalp pulling and tingling – you name it as a symptom related to heart and head, I had it. It even felt as though my heart was beating HARD and then would stop….. and then start again.
I read it over and over again in chat rooms, on Facebook – people struggling with Lyme having similar symptoms.
What is this and why?
Well, its kind of hard to understand and explain. Not just because its Lyme and I am an unqualified medical professional, but because it is so unknown and new.
CCSVI – Chronic Cerebrospinal Venous Insufficiency is a condition that in the last four years has been discovered to be associated with Multiple Schelorisis (MS) by Dr. Paulo Zamboni in 2008 after 10 years of research. It is so new; they are not sure what causes it and how to prevent it. The supposition in regard to Lyme is that the bacteria or a co-infection causes some sort of sticky material that cinches down the venous flow out of the brain.
So what does that mean for you?
Well, you have 2 pathways for blood to drain out of your brain – sinus drainage begins in the back and joins two front drains then connects to your 2 jugular veins. For some reason, one or more of the coinfections associated with Lyme causes a sticky substance to adhere to the walls of the jugular veins and the vein then “collapses” onto itself and restricts blood drainage out of the brain.
So what does that mean for you?
If you just peeled enough potatoes for Thanksgiving dinner in your sink and try to put them all down the garbage disposal, what happens? Well, it could stop up your sink and grind your garbage disposal to a halt if you don’t do a little bit at a time. Imagine your body is that clogged up drain. The sink is on, the peelings have clogged the sink, what happens to the water? It has no place to go but to fill the sink back up.
In your body, if the heart is beating and pushing blood up to your brain (which it needs for the oxygen and energy to power your body), but the blood can’t drain out to be recycled, then you have your own form of a back up. Its called “backflow”. The “old” blood that can’t drain out the jugular veins backflows down against the arterial flow up to the brain. It has to find a way out and that is the only door open. That backflow of blood puts tremendous pressure on the heart the the arterial flow throughout the upper torso.
This pressure also can affect vision, hearing, neurological functions, short and long term memory and much more. The brain gets inflamed from all the pressure. The extra “old” blood laying around leaves iron deposits which affect brain function. And the brain is still not getting a full new load of blood because of the backflow problem.
Now for all you who have experienced Lyme Brain – this can be a huge component. The neurotoxins don’t help the issue at all, and the pathogens do their own damage to the brain. But if the brain isn’t getting proper oxygenation, then the entire healing process can be sunk.
Depending on where you are in the country, it will be difficult to find a doctor who has even heard of this issue. Finding someone who can then actually find it is another challenge entirely. There are only a few surgeons in the entire country (Newport Beach, CA, Las Vegas, NV and Atlanta, GA) actually correcting CCSVI and in the last 2 years or so, they realized there was a crossover from MS to Lyme and other neurological conditions. The surgeon in Las Vegas who performed my surgery has performed the surgery on thousands of MS patients, but only a scant handful of Lymies. It is that new. But, it was that successful.
Some of you may have heard of Dr. Klinghardt – who is a rockstar in the Lyme community and a pioneer in his research.
In “A Deep Look Beyond Lyme” from 2011 in Redmond, WA. – Dr. Klinghardt spoke on CCSVI and LYME.
- Dr. Klinghardt has seen CCSVI in 100% of his tested MS patients, autism patients, Parkinson’s patients, ALS patients, and Lyme patients.
- There are 5 parameters that are looked at during a CCSVI evaluation. In MS, 2 of 5 are often observed. In Lyme, it has been closer to 4 of 5 and in autism, it is often 5 of 5. The best Lyme patient thus far was 3 of 5. Lyme patients, on average, test worse than MS patients.
I didn’t drive for almost 18 months because my vision was so impaired. I was improving but continually backsliding and the heart palpitations and chest pain was getting incredibly intense the better I felt. It wasn’t until after I had this CCSVI surgery performed that my true recovery began, because the Lyme treatment was not reaching my brain due to the insufficient blood flow.
Take this very seriously and find a doctor who understands it.
Not everyone is a good candidate for the procedure. Find a doctor, call one of the facilities and do some research. It is a pretty painless procedure and insurance does cover costs at some of the facilities. It is done outpatient, so no hospital stay. If you have any symptoms like these and they are not clearing up as you battle to heal, then check this out.
There is another more indepth article I wrote on CCSVI on Ezine.
To blessings and healing,
Janice Fairbairn
softcover book – http://www.amazon.com/author/janicefairbairn
eBook – http://www.lulu.com/spotlight/JustLivingLikeThisWithLyme
Facebook – https://www.facebook.com/justlivinglikethiswithLYME
Blog – https://justlivinglikethiswithlyme.com/my-blog/
Twitter – https://twitter.com/janicewithlyme
Pintrest – http://www.pinterest.com/jpfairbairn/just-living-like-this-with-lyme/
Why You Should Hire WordPress Support From GeometricBox