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If you ever have watched this USA network show “Royal Pains” and have Lyme disease you have wished what I have. That you have a perfectly scripted Hollywood doctor that made housecalls and found your mystery Lyme disease within a 60 minute show and fixed you with one dose of […]

LYME is a “Royal Pain”

1 Oct, 2013 in Uncategorized tagged LYme / Lyme disease / tick bite / tick borne illness by justlivinglikethis

I couldn’t even make it up if I tried, but today at the Wichita Flight Festival, we saw it with our own eyes. A custom school bus with 42,000 horse power rocket engine on the back raced and beat an airplane (by a mile, I might add). I’ve lived in […]

Jet Powered School Bus

29 Sep, 2013 in Uncategorized tagged Chronic Lyme / healing from lyme / LYme / Lyme disease by justlivinglikethis

If you had asked me a few years ago about Plum Island, I would have thought it was the big square cart at the market holding allthe plums – or maybe a new club downtown for the kids to go dancing. Otherwise it was non-existent on my radar screen. I […]

Is Plum Island the New Green?

27 Sep, 2013 in Uncategorized by justlivinglikethis

Last week in a torential Kansas rain storm, I realized I was red lining on the gas gauge. Unfortunate timing, but I was carting multiple children to after school activities and had to fill the tank. The closest station didn’t have the proper amount of “roof” coverage, not that in […]

Blinding Rain

23 Sep, 2013 in Uncategorized tagged healing from lyme / kansas rain / LYme / Lyme disease by justlivinglikethis

It began 3 summers ago, an annoying uncomfortable feeling in my sternum. As it grew and became painful, I did the smart thing – I ignored it. Then I did the second smartest thing and started working around it. It vacilated between sharp hot coal poker pain and fat gorilla […]

Had to Toss the Bra…..

19 Sep, 2013 in Uncategorized tagged health by justlivinglikethis

021513_1511[00] — In Kansas we call it the “big sky” effect – there’s not a shortage of sky anywhere here. After growing up and living in other states, I am painfully aware of this fact. We don’t have trees, mountains, hills or lakes, but we have tons of sky. On my return […]

Cloud Watching

18 Sep, 2013 in Uncategorized by justlivinglikethis

Twelve years ago today, I was just off the Path Train from the sub-basement of the World Trade Center North Tower. Just walked into work 2 blocks when the first plane hit. Today carries alot of memories for me, as it does for everyone who was there, everyone who watched […]

Where were you on 9/11? I was there.

12 Sep, 2013 in Uncategorized by justlivinglikethis

I totally date myself at this point – I’m so sorry to the younger generation who doesn’t know Laverne and Shirley – or for that matter, Lenny and Squiggy. A friend of mine asked the other day, “Why did you name it ‘Just Living with Lyme’, aren’t you healed from […]

Proudly wear my scarlet letter “L”…..

5 Sep, 2013 in Uncategorized by justlivinglikethis

In 1992 the movie a League of Their Own came out depicting the story of the All American Girls Professional Baseball League from the 40’s and 50’s. There is a particular part that has become a punchline of hilarity – to me anyway. After missing a easy play, the coach, […]

There’s No Crying in Baseball

2 Sep, 2013 in Uncategorized by justlivinglikethis

So, I have always had incredibly vivid dreams my whole life, except for when I was terribly sick with LYME. Now that I’m feeling better, they have returned. A few weeks ago, I woke up really uptight and upset and couldn’t figure out why until I started remembering the dream […]

Love Shack, baby Love Shack

27 Aug, 2013 in Uncategorized tagged except for when I was terribly sick with LYME. Now that I'm feeling better / I have always had incredibly vivid dreams my whole life / I woke up terribly uptight and upset and couldn't figure out why until I started remembering the dream that I awoke in the middle of it. I was choregraphing a dance routine (have no idea where and wit / So / they have returned. A few weeks ago by justlivinglikethis